I've been doing a lot of research lately, trying to learn as much information as possible about our baby's condition. Along the way, I've happened across some very cute "O babies" who had happy endings! Here are links to a couple:
Baby Luna- born at 36 weeks gestation, her omphalocele included her liver and part of her intestines and stomach. She is now a healthy (and adorable!) five year old.
Zack- born with a giant omphalocele including all of his intestines and liver. Instead of immediate surgery, his doctors and parents opted for the more conservative "paint and wait" method. He was able to breast feed at two days old and come home after only one week in the hospital! He had surgery at six months and is now a very healthy young boy!
Stories like these give me hope :)
Here are a few more blogs (though I can imagine you've already stumbled upon them)-
ReplyDeletehttp://omphalocelemom.blogspot.com/
http://www.caitlynsstory.com/medical.htm
http://karsiegene.blogspot.com/2009/03/omphalocele-diagnosed-3-12-09.html